Category: Narrative Reflections

We Are No Longer Alone: Student Panelist Reflections on the Advancing Accessibility and Disability Equity Summit

In a vibrant panel discussion on Day One of the Summit, five DPT students with disabilities presented their lived experiences in telling, poignant detail. Attendees later agreed this panel was the “pinnacle of the day.” In this article, the students note the effect their participation had on their own hearts and minds as well; their words show a renewed sense of hope and purpose. “This was a real meeting of the minds to solve the issues blocking the accessibility of our profession,” one author says. “I quickly began taking notes on these topics to take back to my program.”

The Young Doctor: One Day, Inshallah

In her winning essay, “The Young Doctor: One Day Inshallah,” Katie Spencer recounts her transformative experience providing medical care in a Syrian refugee village during her time as a US Army medic. Central to her essay is an encounter with a young girl who dreamed of becoming a doctor, despite her school being destroyed by insurgents. Spencer invited her to follow along as she treated patients. Learning to innovate patient care with limited resources, Spencer prioritized listening to patients’ stories and recognized that “language barriers and cultural differences mean little when a bridge of universal compassion is built.” Her essay emphasizes that healthcare extends beyond visible symptoms, requiring providers to understand patients’ personal narratives and cultural contexts.

Running Before I Could Walk

Physical therapists who fulfill a clinical rotation abroad often quickly gain new cultural and medical insights. The experience can be particularly intense for students. In this soul-searching account, SPT Mitchel Fenrich describes his day-by-day enlightenments while seeking to help a child with cerebral palsy in Tanzania. He notes the new perspectives he gained on clinical assessments, treatments, cultural mores—and on himself as a practitioner.

Mirroring Each Other: Beyond AI’s Capability

Download the article (pdf) Table of Contents Congratulations to Doctor of Physical Therapy Student, Caitlin Miller (George Washington University), finalist of the annual Student Essay

The Power of Touch: Trust

Seeking to illustrate the nuances of physical touch in PT practice, Brandon Ness, DPT program faculty member and artist, created an image to inspire discussion among his students about trust and healing. His account of that process—creating and refining the image, going through a Visible Thinking exercise with his students—shows how art can inspire fresh critical thinking.

At Capacity: How Physical Therapists Will Gain More by Doing Less

At Capacity: How Physical Therapists Will Gain More by Doing Less by Hannah Sy, PT, DPT, JHR’s award-winning 2024 student essay, examines how the increased use of AI in the physical therapy clinic may actually improve humanistic patient care. According to Sy, “the advantage of AI…is its ability to solve complex problems with its capacity to process copious amounts of data.” As physical therapists are assisted in data-based problem-solving and treatment planning by AI, she notes, their time may better be applied to connecting with the human beings they seek to rehabilitate.

From Individuals With Aphasia and Brain Injuries to Poets: How the Book I Don’t Think I Did This Right Came to Be

From Individuals With Aphasia and Brain Injuries to Poets: How the Book I Don’t Think I Did This Right Came to Be by Kathryn Paulson, Brendan Constantine, and Jerry K. Hoepner, relates how a group of dynamic poets developed out of a few workshops for individuals with stroke-based aphasia and traumatic brain injuries. Starting out as an idea to spur creativity and help participants share their stories, the meetings quickly developed into the Thursday Night Poets group. Their first published work, described here, offers poetry of deep meaning and resonance for anyone who has ever faced a challenge.

A Seat at the Table: A Reflection on Engaging Disabled People and Their Families in Research and Service Design

Dr. Phoenix and authors explore the metaphor “a seat at the table” in the context of including Disabled People and their families in system-level service design and research. They challenge us to consider inclusivity by interrogating this vision of “the table” in terms of ownership, participation, and consequences after a discussion ends.

Steps Toward Inclusion for Those Without Words

Download the article (pdf) Table of Contents Congratulations to Doctor of Physical Therapy Students Vanessa Lista, SPT (Neumann University) and Priyanka Bhakta, SPT (Emory University),

CHEP-JHR Student Essay Contest 2023-2024

Download the article (pdf) Table of Contents The Consortium for Humanities, Ethics and Professionalism (CHEP) of the American Council of Academic Physical Therapy (ACAPT) advocates

Resonance

Download the article (pdf) Table of Contents The news came via text from a colleague. Adam had died the day before, from a cause not

A Miracle of Modern Medicine and Mobility

Download the article (pdf) Table of Contents Early in my career I worked very closely with a patient who many on my ICU team said

Living the Hard Times Out Loud

This beautiful poem by “a mother on a mission to help families and caregivers navigate life with differently-abled kids” presents the powerful story of Noah Williams. Noah lives an extraordinary life as an artist, athlete, and public speaker, as he deals daily with cerebral palsy, epilepsy, and visual impairment. As Naomi’s words flow through the poem, they detail his lifelong struggle, and the love of people who join in his joy of living and help him navigate his days. “The best that is in him keeps unfolding into the spaces so many help open and hold.”

“Finding Balance: The Hidden Gift of Being Thrown Off-Course”

In this second student essay focused on the Covid learning years, Bridget Graff details how her frustration with forced digital learning led her to discover a whole new perspective on life and work. Moving from being an active, dynamic, overworked student to one focused more on “concepts,” she developed a work-life “balancing act” that improved her academic performance—and will serve her for years to come.

“Do You Have the Coronavirus?”

On a day that should have been memorable for its joy, Henry Fok had an encounter that would ultimately inspire him to re-examine his future role as a physical therapist.

Healing Hands: A Street Medic in the Twin Cities Uprising

This unique reflective narrative presents a harrowing account of a clinician’s experience trying to heal the wounds of demonstrators during the Twin Cities uprising this past spring. Michael Rosentreter and Jáime Gonzalez vividly describe Rosentreter’s time spent navigating flash grenades, tear gas, and other threats as he provides medical support to demonstrators. The experience helped him realize how valuable the role of a physical therapist in emergency settings truly is. Reflecting on the lessons learned during those nights, he realized, “However elevated the risk to me, nothing I experienced compares to the fear and danger people of color continually face.” He states his commitment to the role of advocacy in physical therapy to recognize and dismantle systemic, institutional, and individual racism.

A Letter to My Mother

An homage to a devoted Charge Nurse, “A Letter to My Mother” lovingly shows what makes a true hero in today’s healthcare system. Ezeoyibo Justin Otiwu’s mother works nights with her COVID-19 patients without complaint and returns home to serve as a caregiver. This letter is a call-to-action for a new perspective on our essential workers, and poignantly drives us to reckon with the question of “how will we advocate for much-needed change to help the system’s valiant fighters?”

Why Was I So Afraid?

In this thoughtful piece, Dr. Regina Kaufman tells of an encounter with a man in a checkout line who remembered that she was his physical therapist more than 30 years ago. Describing the man’s “relatively cool” demeanor, she expresses her fear that perhaps his memory of his treatment was not a completely positive one. She tries to recall the level of care she was able to provide as a novice, and notes that wisdom can only truly develop over time.

Vulnerability in Sports and Orthopedic Medicine

In her narrative reflection, Kate Mihevc Edwards presents her honest self-portrait as an avid runner whose life — and very identity — were altered by injury. But experiencing the vulnerability of losing her very sense of self proved to be a gift over time, she reports. “The work I put in to help me survive and cope made me a better clinician,” she states. She shows how her loss helped her to develop a deeper understanding of the importance of empathy in healthcare.

My Father’s Journey: A Reading and Interview with Susan S. Deusinger, PT, PhD, FAPTA

In a poignant personal account, Susan Deusinger details her father’s final months and his ultimate decision to take charge of his own death process. Although his passing left a void in her life, she notes that he also gave her “the privilege of honoring his beliefs and supporting his choices — something we don’t always have the opportunity to do as clinicians.” A video interview accompanies this piece, in Deusinger’s own words.

Beyond Words

In her essay, “Beyond Words,” Amanda Kaufman, PT, DPT illustrates how providing a space for her patient to tell her full story, during one of her darkest moments, and listening carefully, established the trust that allowed their healing work together to begin.

Pride, Prejudice, and Professionalism

Grace White, PT, DPT, relates in her essay, “Pride, Prejudice, and Professionalism,” how she used patience, insight, and a clever strategy to overcome her patient’s sexist bias against her and deliver his treatment.

Searching Behind “No!”

Congratulations to Northwestern University Doctor of Physical Therapy Program graduate student Bethany Shieh, SPT, the winner of the annual physical therapy student essay contest co-sponsored by the ACAPT Consortium for the Humanities, Ethics, and Professionalism (CHEP) and JHR. In her essay, “Searching Behind ‘No!'”, Ms. Shieh illustrates how we can create space to understand the pain, suffering and frustration that accompany and influence patient care, if we are willing to enter and dwell in our patient’s life experience.

Out of Oxygen

In this sensitive reflection, DPT student Mercedes Aguirre describes an incident during her first clinical experience that taught her the importance of taking a deep breath—and speaking up on behalf of one’s patient.

Beyond First Impressions

Jake Raecker, DPT student, recalls a patient he encountered during his first clinical rotation who gave him quite a shock—but, with care and attention, taught him a valuable lesson about looking beyond first impressions.

“The Best is the Enemy of the Good”

The healthcare professions often attract talented, committed perfectionists. But what can practitioners do when that perfectionism negatively affects rehabilitation? In “The Best is the Enemy of the Good,” David Gillette describes how his PT residency experience, and the thoughtful guidance of his mentors, helped him confront the negative aspects of his perfectionism and turn his thoughts toward the good.

Human Anatomical Gifts and Informed Consent: Three Perspectives

The United States abides by the Revised Uniform Anatomical Gift Act to regulate bodies donated to science; prior consent must be given. When DPT students at Georgia State University had the opportunity to attend an anatomic exhibition displaying preserved human specimens from another country, many ethical questions arose. In “Human Anatomical Gifts,” three writers offer their perspectives, developed during the discussions that ensued, on the ethics of anatomic study—and exhibition.

Reading Eucalyptus: Reflections on Narrative Education in Medicine and Health Sciences

Healthcare educators may find inspiration from a seemingly infinite number of resources. In “Reading Eucalyptus,” Christy D. DiFrances describes how an encounter with a work of magical fiction years ago still provides her with “keen observations that are surprisingly relevant to education in academic medicine and health sciences.”

The Fragility of Life: Through Service I Live

In an honest case study from his residency year, Corey Nolte shows how “my narrow-minded understanding of the resiliency of the will to live was expanded.” As his terminally-ill cancer patient became more frail and less willing to accept treatment, they shared a tender, intimate moment of prayer. Nolte offered comfort through his patient’s final days. By carefully supporting end-of-life wishes, he notes, “we can help to unburden patient angst and give direction to our own moral compass.”

Climbing Back into the World

In her stark and direct poem, Kirsten Woodend details the “multitude of indignities” that someone “in the process of body repair” can suffer. She notes how a person in recovery becomes a child in others’ eyes, “incapable of coping mentally or physically.” The poem asks why these extra psychological burdens must be added to the healing process.

Patient Care During a Pandemic: The Significance of Humanism in Healthcare

How does a student cope with isolation during a forced four-month break from clinical rotations? Olivia Wolfe enrolled in an online course, Humanism in Health and Healthcare. Its impact inspired her to use her “voice and privilege to uplift and support essential causes fighting the twin pandemics of COVID-19 and racism.” She details her journey to a new commitment to humanism at home and in the clinic.

A Journey Toward Mindfulness

In “A Journey Toward Mindfulness,” Kelsey Robinson, SPT describes the steps she took to turn the effects of a crippling racist remark into a positive force for self-discovery. Rather than holding in her pain and self-doubt, she accepted an invitation to tell her story to young people. “In the process, I found my voice,” she notes. She encourages others to do the same. “Someone needs you,” she states. “The trials you face today will become your strength tomorrow as a clinician.”

The Gift of a Quieted Breath

Hannah Vaca evokes an important learning moment in this moving and heartfelt poem, as she reflects on the gift a donor’s body provides and how a donor’s sacrifice impacts the lives of developing health professionals.

Pitfalls and Pearls of Persistent Pain

As the subject of chronic pain and its treatment has become crucially important in today’s healthcare and rehabilitation environments, we offer the accounts of three physical therapists who have encountered patients with persistent pain and learned valuable lessons in the process. The article shows how a humanistic approach—involving factors such as trust, shared decision-making, and empathy—can add a psychosocial dimension to the treatment of chronic pain, and work to achieve more lasting results.

Life Transformed Through Movement

A photograph, a memory of the sound of wind in the trees, of a chill in the air, invoke a personal reflection of a life focused on movement and care. In her delicate poem, Kathryn Zalewski, PT, PhD, MPA,uses Gregg Fuhrman, MPT, OCS, CFMT, CMTPT’s image to guide her description of life as a physical therapist, a mother, and a teacher — in whispers.

Three Voices at the Table

In a fascinating, creative account, Tania Riske, MS/CCC-SLP, and CeCelia Zorn, PhD, RN let the voices of a patient, his wife, and his speech/language pathologist describe the challenges, small triumphs, and human connections involved in the treatment of primary progressive aphasia—a rare neurological disease that causes the total loss of speech.

Student Essay Contest Winner: Mrs. Z

Congratulations to Creighton Doctor of Physical Therapy Program graduate student, Hayley Rieger, the winner of the inaugural physical therapy essay contest, co-sponsored by the ACAPT Consortium for the Humanities, Ethics, and Professionalism (CHEP) and JHR! She reflects how her patient taught her that “helping someone reach their full potential means hearing the song in their heart and finding a way to sing it back.”

Healing from ‘Brokenness’: The Story of Corinne

In this tender account of his family’s fostering and later adoption of Corinne, a physically traumatized infant born with neonatal abstinence syndrome, Chad Jackson, PT, DPT, OCS, details how a healthcare provider’s empathy, empowerment, and connection form a crucial aspect of the healing process.

The True Weight of Stigma

In a thoughtful and sensitive report, physical therapist Cameron Jadali discusses the lessons learned in his interaction with an overweight patient–reflecting on his previously unrealized biases regarding weight.

The Other Side of the Bedrail

After nearly 20 years of clinical practice, physical therapist Mary Pugh Alligood finds herself reflecting on lessons learned from the other side of patient care and poignantly describes her experiences after a diagnosis of inoperable brain cancer tumor and colostomy surgery.

Lessons from the Lake

Through her description of a personal encounter with an acquaintance devastated by a stroke, Regina Kaufman, PT, EdD, MS, NCS, contemplates how personal connection during therapy sessions may enable patients to re-embody the world and social roles that they have lost.

Remnants of Her

Program Director in Nutrition and Dietetics at the University of Southern Mississipi, Dr. Holly Huye shares a poignant reflection of her mother’s struggles with dementia and a family’s dedication to preserving memories.

Dual Impact

Amanda Lalonde’s clinical narrative reflects on the power of her patient’s resilience, and its impact on both his recovery and her sense of self as a clinician.

A Voyage Homeward: Fiction and Family Stories—Resilience and Rehabilitation

As a masterful story-teller, Dr. Marshall Duke shares his compelling research with the Family Narratives project, in particular that “knowledge of family history [is] crucially important to well-being” and that both good and bad family stories serve to build strength and resilience.

They Have a Story

In this perspective piece, Emilly Marshall reflects on lessons learned from the early weeks of her very first clinical rotation. Her narrative, “They Have a Story” reminds us with a sincere vulnerability and honesty to pause – and remember – that we all “have a story,” if we only listen.

Embodied Narrative: Living Out Our Lives

For this inaugural issue, we are very humbled and honored to have Dr. Rita Charon share her perspectives on the importance of humanities in rehabilitation sciences. Dr. Charon, who has pioneered the study of narrative medicine, generously provides an interdisciplinary perspective that powerfully underscores the concept that humanities are “[f]ull partners in the restoration of health.”

Reflections on Writing Patient Poets: Illness from Inside Out

Dr. Marilyn McEntyre further expands on the impact of poetry for patients in her book, “Patient Poets: Illness from the Inside Out.” She gently encourages us to explore the valuable information we can learn from patient poems not gleaned from our typical clinical evaluation. 

Murderball — A Metaphor for Recovery

In this expansion to the media review of the film, Murderball, Dr. Sarah Caston builds upon the films theme to share an intimate and deep reflection on her experiences with this patient population and her own personal evolution in this challenging area of practice.

Enough Said

In this thoughtful narrative reflection, Dr. Keenan Whitesides recounts a patient interaction where she learned how to lead with humanism and that “sometimes the best instruction comes from knowing when to say nothing at all.”

Context is Everything

In this powerful narrative reflection, Dr. Rebecca Gene Crockett details her experience working abroad as a clinician and using a humanistic lens to better understand the importance of addressing societal barriers than impact clinical care.

More than the Sum of his Symptoms

In this thoughtful narrative reflection, Dr. Allison Nogi recounts an early patient interaction as a student in which she learned the importance of treating patients with compassion.

We Are No Longer Alone: Student Panelist Reflections on the Advancing Accessibility and Disability Equity Summit

In a vibrant panel discussion on Day One of the Summit, five DPT students with disabilities presented their lived experiences in telling, poignant detail. Attendees later agreed this panel was the “pinnacle of the day.” In this article, the students note the effect their participation had on their own hearts and minds as well; their words show a renewed sense of hope and purpose. “This was a real meeting of the minds to solve the issues blocking the accessibility of our profession,” one author says. “I quickly began taking notes on these topics to take back to my program.”

The Young Doctor: One Day, Inshallah

In her winning essay, “The Young Doctor: One Day Inshallah,” Katie Spencer recounts her transformative experience providing medical care in a Syrian refugee village during her time as a US Army medic. Central to her essay is an encounter with a young girl who dreamed of becoming a doctor, despite her school being destroyed by insurgents. Spencer invited her to follow along as she treated patients. Learning to innovate patient care with limited resources, Spencer prioritized listening to patients’ stories and recognized that “language barriers and cultural differences mean little when a bridge of universal compassion is built.” Her essay emphasizes that healthcare extends beyond visible symptoms, requiring providers to understand patients’ personal narratives and cultural contexts.

Running Before I Could Walk

Physical therapists who fulfill a clinical rotation abroad often quickly gain new cultural and medical insights. The experience can be particularly intense for students. In this soul-searching account, SPT Mitchel Fenrich describes his day-by-day enlightenments while seeking to help a child with cerebral palsy in Tanzania. He notes the new perspectives he gained on clinical assessments, treatments, cultural mores—and on himself as a practitioner.

Mirroring Each Other: Beyond AI’s Capability

Download the article (pdf) Table of Contents Congratulations to Doctor of Physical Therapy Student, Caitlin Miller (George Washington University), finalist of the annual Student Essay

The Power of Touch: Trust

Seeking to illustrate the nuances of physical touch in PT practice, Brandon Ness, DPT program faculty member and artist, created an image to inspire discussion among his students about trust and healing. His account of that process—creating and refining the image, going through a Visible Thinking exercise with his students—shows how art can inspire fresh critical thinking.